We All Have A Story

Every single one of us has a story. We’ve all been on a journey since the day we were born. We all have anecdotes of funny things that have happened. We’ve all had times where less-funny things have happened and life has thrown us a curveball which has changed the direction we’re travelling in.

But when our journey involves mental illness, it can be hard to talk about. Sharing it becomes a struggle. People ask us what we did last weekend and we haven’t got a clue how to answer because last weekend we were struggling to breathe under the weight of depression/in hospital/hiding under a blanket or something. You can’t really answer the question ‘wheat have you been up to lately?’ with ‘trying to survive’.

So our story becomes holey. It contains blanks. Black holes of difficulties, tears, resilience, strength, and courage.

My personal story is 24 and a bit years long. It’s had many ups and downs. It’s had lots of twists and turns. At times it’s been a comedy, there are times when it’s perhaps been more of a tragedy. But it’s mine.IMG_9155

I’ve been very open with some parts of my story (you can’t really hide the fact that your Mum is dying, or that she’s died). But there are other parts of my story that have remained hidden. Bits that I haven’t wanted to admit to myself, never mind anyone else. Bits that I’ve felt ashamed or guilty about. Things that get so messy in my head that I don’t have the worlds to put them down on paper.

Sharing our stories can be incredibly freeing. It can feel like pushing a ten-tonne weight off our chest, standing up and announcing to the world ‘This is me! This is who I am! I’m not going to hide any more!”. But it’s also so hard. It can leave us feeling very vulnerable. In writing them it can bring up a lot of difficult things.

I wasn’t going to share any of my story today, but in seeing all of the #WeAllHaveAStory tweets on Twitter, as part of the #BigBlurtathon, I’ve been inspired to share a little bit of things I’ve previously not shared. So with a deep breath, and a heck of a lot of coffee, here goes!

I’m no stranger to mental illness, or life being a bit of a knob. I’ve had depression since a very young age – something I’ve blogged about once or twice. My Mum was diagnosed with cancer when I was 18, became terminal when I was 20, and died when I was 21 – something I’ve blogged about extensively. I’ve also had an eating disorder for about 12 years. That’s the bit I’ve not written about.

I’ve not written about it because I feel/felt guilty. I feel/felt ashamed of it. I feel/felt like it was my fault, like I was doing it to myself, like I was ungrateful for intentionally starving myself when others have no choice but to starve. Keeping it secret helped the illness to thrive and I needed the illness for a long time. For a long time it kept me alive.

I’ve not been immune from the side effects of this constant attack on my body. But I barely recognised it as anything other than “oh well, this is how life is”. The fact that I was on 20+ medications at times, was at the GP every week, had bloods weekly, never had all my bloods in range, wasn’t allowed to drive far, and wasn’t allowed to exercise or camp (among a million other disadvantages), just didn’t register in my brain as anything at all abnormal for a twenty-something-year-old. People sometimes told me that I’d end up in hospital. But I always replied that I’d had this illness for over ten years and hadn’t ended up in hospital before so it was fine. I remained “functional”.

But this week exactly a year ago, all this changed. I received a call when I was at work asking me to come in for repeat bloods and an ECG. My blood test results were not good. I decided it would be fine but IMG_2972along I popped. On 22nd September, I saw my usual GP and she admitted me to hospital. I was terrified. I’d never been in hospital overnight before. The following 2 weeks involved a total of 10 days in hospital over 3 admissions. I would be discharged and then readmitted a day later. At one point there were less than 24 hours between being discharged and being readmitted (and I was asleep for about 12 hours of that).

I was desperate for help. The nurses on the ward were desperate to get me help. I cried more than I’ve ever done before. Ever. (Including when Mum died). I spoke to various mental health professionals. I had panic attacks in the middle of the night. I had some incredible nurses who I will never forget. One hugged me at about 3am and snuck me a cup of tea (I was on restricted fluids) until I could breathe again. One switched the room she was covering to make sure she was my nurse.

I had some atrocious nurses and doctors. “Professionals” who treated my like a piece of dirt on the bottom of their shoe. Who made snide remarks. Who made me feel like I was undeserving, like I’d chosen to be there, like I’d be less of an inconvenience if I’d hurry up and die. Some of the mental health professionals weren’t much better.

The following few months are still a blur. I was trying to get myself stable again. I was trying to follow a meal plan and a fluid plan. I wasn’t doing a great job, but I was trying. There were things I was doing which I didn’t think others would realise were me ‘getting around the system’. There were things I was doing which I didn’t realise were anorexia not me.

In January I was admitted again. The staff on the ward remembered me. I was lucky to largely have brilliant staff this time, on both of the wards I was on. Staff who went out of their way to find food I ‘could’ eat. I had an incredible pair of mental health professionals this time, too. I was still terrified. I remember at one point telling the mental health team that the meds the ward were giving me were coating my insides and contaminating me. This wasn’t psychosis – it’s what happens when your body doesn’t have what it needs.

Unfortunately, things continued to deteriorate. I was of the opinion that I had solved all the issues I was having in a very logical way. My GP did try to explain that crawling around my house was not a solution to fainting whenever I stood up, and that actually giving myself some food/fluid might be a better plan. I didn’t agree.IMG_0344

Looking back on it, I could have died. I was so poorly. Apparently I wasn’t making any sense. I was days away from permanent kidney damage. I had to stop going to my GP surgery for bloods twice a week because I wasn’t well enough, and had to go to the mental health place instead. I was admitted straight from there on my last general admission.

I was absolutely terrified. Not of dying, like you might think. But of the things that they were attaching to my drip. Of the fear associated with having things in my body. It didn’t register that I was, yet again, attached to a permanent heart monitor or that, yet again, I was the youngest patient in the room by about 50 years. I was terrified and trapped and the only reason I didn’t pull everything off/out and run home, was because I knew I’d get sectioned. The only time I was even remotely scared for my health was when all of my muscles seized up and I couldn’t move and struggled to talk.

Again, I had a mix of staff. There are some staff who I am forever indebted to. Who showed me pictures of their cat and spoke to me like a human. Staff who came back at the end of their shift to wheel me down to the gift shop to buy puzzle books. An amazing mental health worker who told me that I was “scared but motivated, and that’s the best place to be when going inpatient”. That got me through my first few weeks on the ED unit. There were also some horrendous staff. There are things from all of my general admissions that at some point I need to work through and process, because I still occasionally have nightmares about them.

You would think, given all of this, that I might have realised that friends and family might realise something was up, but I didn’t. I was largely convinced that I looked normal and that I was an excellent secret-keeper. I wasn’t.

A week later I was admitted to an eating disorder unit. It was the hardest 6 months of my life. I’ve gained 75% of my weight again. I’ve cried (a lot!). I’ve panicked. I’ve felt hopeless. I’ve eaten things I hadn’t eaten in years and years. I’ve sat with the most uncomfortable of uncomfortable feelings. I’ve talked. I’ve opened up. I’ve worked so unbelievably hard. I’ve developed a (real!) laugh. I’ve found hope. I’ve found some moments of peace. I’ve found my fight. I’ve found my sparkle. I’ve found my will to live.

My story is messy. It’s hard to read. It’s hard to remember. There’s a lot I don’t remember. It’s a bit of a disaster zone at times.

IMG_1342It’s the story of a girl who was lost. A girl who wasn’t remotely interested in being alive. A girl who thought that life couldn’t change. A girl who thought it was as good as it was going to get. A girl who was destroying herself to cope with a world that felt un-cope-able-with. A girl who didn’t believe in recovery.

But it’s also a story of a girl who didn’t get home until almost 1am last night after a meal out with colleagues in which she laughed for about 4 hours straight. It’s the story of a girl who went camping over summer for the first time in years. It’s the story of a girl who spontaneously decided to go to Whitby one day because she wanted to see the sea. It’s the story of a girl who jumped from rock to rock at Brimham Rocks a few weeks ago. It’s the story of a girl who went out, got tipsy, and danced for hours a few weeks ago. It’s the story of a girl who jumped in her car and drove 4-5 hours to Bristol because she wanted to see her cousin and his family. It’s the story of a girl who is now a sister, a friend, a daughter, a cat-mother, a granddaughter, a niece, a colleague, and a fighter.

It’s the story of a girl who now believes in recovery.

I hope that however hard my story is to read, that it’s one of hope. I hope that it shows others that life doesn’t have to be this way. That there is a chance (however small) that things can get better.

I also hope that my story shows what a difference good professionals can make (and that it prompts those professionals with prejudices about eating disorders to have another think). I wouldn’t be here without some incredible professionals who didn’t give up on me. But more importantly, without the most unbelievably amazing friends and family a girl could ever ask for. I wouldn’t be here right now without some amazing nurses and doctors, some amazingly lovely fellow patients on all of the wards I’ve been on, and my friends and family.

This is just one chapter in my story. There is so much more to come. It’s not always going to be easy. I’m not ‘fixed’. I’m not ‘cured’. I’m still on 10+ medications, under the mental health team, and have regular bloods and weight checks, and have to do things daily to keep myself afloat. But I’m excited for the future, now.

I’ve chosen to own my story and I’m excited to find out what happens next.

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You Are Succeeding By Surviving

It’s that time of year again where people happily share their incredible uni results, graduation photos are imminent, GCSE and A-Level results are just around the corner, everyone seems to be passing their driving tests, getting new jobs, getting promotions, getting engaged, moving house, and digging wells in African villages, all at the same time.

For some of us, none of these things are true.

Some of us are trying our best to stay alive, and that’s pretty much all we can manage. Many of us have dropped out of university degrees (if we ever got there in the first places). Lots of us have had to put our GCSEs or A-Levels on hold (or if we do manage to sit them, we don’t achieve anything close to our potential). Some of us are unable to drive until our medication settles and/or our health improves. Lots of us aren’t able to hold down a job, or if we can, we’re on reduced hours. If we do have a job, it might be miles away from our dream job – we’re just not well enough to even apply for those kinds of jobs. Many of us struggle to maintain friendships, never mind even attempting a relationship. A lot of us are still living with our parents or other family members, because we need them to help care for us. Many of us can’t travel further than the end of our garden without a panic attack, if we can move ourselves at all.

Being in our late teens/early twenties, we’re expected to be carefree. We often don’t have responsibilities for anyone other than ourselves. We’re expected to spend time having fun, going out, working out who we are and what we enjoy, and generally making the most of life.

But that’s not always the case. Sometimes we don’t have that luxury, because we’re simply not well enough. Life can play a cruel hand at times.

It doesn’t mean that we’re not achieving and succeeding, though. Our success might just look a little different to others.

Sometimes success is taking PRN, even if you feel like we are ‘giving in’ by doing so. Sometimes it’s getting to bed by 10pm each night, even if it makes us feel like a granny. Sometimes success is learning how to say ‘no’ to things that hurt us. Sometimes success is forcing down 3 meals and 3 snacks a day, however loud our heads scream. Sometimes success is getting our notifications down to zero. Sometimes, success is taking our meds as prescribed. Sometimes success is dragging ourselves down to the GP even if we feel we don’t deserve it, or we’re wasting their time. Sometimes success is making it into town alone. Sometimes success is letting our family members and carers help us. Sometimes success is navigating the benefits system. Sometimes success is just showing up – whether it be to school, to work, to a class, or somewhere else. Sometimes, success is allowing ourselves to do the things that we enjoy.

Sometimes success is simply doing what’s best for us. It’s taking care of ourselves. It’s continuing to stay alive, whatever is thrown our way.

To all of you who are feeling pretty rubbish at the moment because everyone seems to be succeeding and progressing, and you feel like a sad, stuck, blob… I want to remind you how wonderful you are. Continuing to wake up every day despite all the setbacks you encounter is so brave. It’s so admirable. It’s so incredibly strong. You are succeeding by waking up every day, by showing up, by never ever giving up. You are awesome.

Featured: http://www.huffingtonpost.co.uk/naomibarrow/you-are-succeeding-by-sur_b_17292692.html

To Those Of You Who’ve Lost All Hope

Sometimes, life does everything within its power to tear us down. It throws everything it’s got at us. It can be exhausting and can leave us lying there on the floor, with all of the energy drained from our bodies.

Everything becomes black – although black doesn’t seem dark enough, or all-encompassing enough to describe the thick fog that smothers everything and makes it so hard to breathe.

Moving becomes hard. Moving hurts, it really hurts. It’s exhausting and it hurts. Reaching to take a sip of a cup of tea can feel as energy-consuming as going on a 10-mile run. So we don’t.

We can’t face going to bed, because going to bed means waking up, and waking up means doing another day. We can’t see any light. We can’t see any future. We have no hope.

I’m not going to sit here and tell you that ‘it gets better’, because it’s probably the last thing you want to hear. It can feel really frustrating when people keep saying that it gets better, because when things are that dark, we can’t see it, and we can’t believe it. It can almost feel like everyone’s just saying it so that they don’t have to talk to us about how crap things are any more. Sometimes we just want to shout ‘when?!’. ‘When is it going to get better? Because it’s been really rubbish for a really long time and I’m tired and I don’t have the strength to fight this anymore’.

When we can no longer carry some hope, we have to let others carry it for us for a little while.

We have to let others carry it for us, until a time when we can pick it back up again.

This can come in the form of colleagues telling us they’re looking forward to us returning to work. It could be a boss reminding us that we have skills and talents. A GP saying ‘see you next week’ or a health care assistant telling us about their weekend. It can be a friend hugging us while we cry and cry, or another friend who spends their Friday evening helping us to write a list of ‘30 reasons to stay alive until Saturday’. It can be a family member inviting us over in a few days time. It can be literally anyone at all who refuses to believe that we might not be able to recover from this.

We need these people to keep believing in us. We need these people who can see us having a future. We need these people who refuse to let us die.

Eventually, in time, we will find glimmers of hope again. We will find cracks of light. We will begin find things to believe in, and our little pile of good things will grow. We might find them in the most unexpected of places – a podcast that speaks to us, the ability to read a page of text, or the joy of being able to taste a cup of tea again. It might take weeks, it might take months, it might even take years, but it will happen.

Until it does happen, until we can carry our own hope again, we have to let others carry it for us.

Featured: http://www.huffingtonpost.co.uk/naomibarrow/to-those-lost-hope_b_16772934.html

Grief Is Not A Mental Illness

At the moment, thanks to the work of Heads Together, there are a lot of people talking about both mental illness and grief.

It’s great – it’s so important to talk about these things. Both can come with a huge amount of stigma, and by talking about it we can help to reduce that stigma, and to remind people that it’s okay not to be okay.

However, one thing that I’m seeing time and time again, is people writing about mental illness and grief as if they are the same thing. I’m not entirely sure why this is – I think it might be because the royals unveiled their mental health campaign whilst also talking about their Mum’s death, and the counselling they had for their grief.

I don’t know the ins and out of the royal’s mental health, and I don’t know whether they have had a diagnosed mental illness, but, what I do know is that grief and mental illness are not the same thing.

Grief is something that will happen to nearly everyone at some point in their lives. It can bring a range of emotions that you’ve never felt pre-grief. It can be distressing, it can cause upset, tearfulness and low mood… but it’s normal to feel that way. It’s normal to miss someone who was a big part of your life. It’s normal to cry. To an extent, it’s normal for it to affect your eating and sleeping habits, at least for a little while.

It can reach the point where you feel you need counselling to give you the space you need to talk about it, and to help you learn how to deal with the emotions it brings up, and that is absolutely okay, but even at that point, it’s not necessarily a mental illness.

Grief could trigger mental ill-health. It can contribute to depression, anxiety and other mental illnesses, especially if you’re already predisposed to them, but it is not, in itself, a mental illness.

Mental illness affects one in four of the population at some point in their life. Mental illness is when the feelings and emotions that we have go out of the spectrum of ‘normal’. If we have a diagnosed mental illness and then go through grief, it could exacerbate the pre-existing illness, but the grief itself isn’t an illness.

It is important to talk about mental health and mental illness and to encourage people to seek help when and if they need it. However, it’s also important to understand that it’s okay to feel. Feeling sad or upset in response to difficult life events – included, but not limited to grief – is absolutely normal.

It’s important to be open with each other when we are struggling, and to reach out for help. It’s important not to squish it down, ignore it, and pretend it’s not happening, because it’s likely to just blow up at some point. It’s important to go to your GP if we feel as though you’re struggling with mental illness. But it’s also important to remember that feeling is normal, feeling is okay. It’s normal to feel sad, upset or low at times, especially if someone close to use has died.

Featured: http://www.huffingtonpost.co.uk/naomibarrow/grief-mental-health_b_16345246.html

Art Journaling

A few months ago, I started art journaling. I now journal most days, and I absolutely love it.

I’ve decided that one of my new life goals is to be one of those people who always has some paint somewhere on their body/hair/clothes. I do it for myself, not others but I’ve started to post some of my pages on 04.jpgInstagram, and sometimes also share them on Twitter and Project 365. People often thank me for sharing them, comment that they can relate, tell me I’ve inspired them to start journaling and share their journal pages with me. I absolutely love hearing from all of these people, it’s wonderful. I’ve shared it with my GP, and other health professionals a few times, which I’ve found to be really useful because sometimes I struggle to communicate with words, so paint can help. The response I’ve received, coupled with the amount I felt it was helping, but also challenging me, and some great sessions doing it alongside a friend, have inspired me to keep going.

Quite a number of people have asked me how they could start art journaling. I am by no means an expert on the subject (I make it up as I go along to be honest), but I thought I’d attempt to write some tips on how you could get started, and to answer some of the questions that people have asked me, so here goes…

What is art journaling?

According to Wikepedia, art journaling is ‘a daily journal kept by artists, often containing both words and sketches, and occasionally including mixed media elements such as collages.’. I wouldn’t really say I was an artist… to me art journaling is expressing myself in a vaguely arty way, in the form of a book, so I suppose the whole concept of ‘keeping a vaguely arty journal’ is open to interpretation, and up to you to make it what you want it to be.

The Book

However you decide to journal, you’re going to need to start with a book in some form. For17270804_1159074677538533_1120881872_n some this could be a lined notebook, or a book with black or coloured pages, others might like to do an altered book. You’ll also need to decide what size you want it to be, and what sort of binding. I personally use an artist sketchbook because the pages are a bit thicker, and I tend to use a lot of paint/glue/things, mine is A5 because I felt like I’d get overwhelmed with anything bigger, and smaller would be too fiddly, and mine is casebound but if I was buying a new one I think I’d get a spiralbound one because it’s exploding a little at this point.

Equipment

05.jpgOnce you’ve got a book, you need some things to help you fill it. I’m a big fan of paint – it features on most of my pages. I personally use acrylics, but I’m not really bothered about brand or anything like that. Sometimes I add water to it, sometimes I use it in a thicker form, I often paint over other things. You don’t need to use acrylics, though, you could use poster paint (which is usually cheaper) or any other paints that take your fancy.

A printer can be useful to print your own photos, or letters, or anything else you fancy popping in. Magazines can be good for those sort of things as well – free campus newspapers are a good start, or I often use the Aldi specialbuy magazines. You can always pick up gossip magazines pretty cheaply (or if you’re feeling brave enough to ask, you might be able to inherit some from a doctor’s surgery).

Wallpaper can be great for different textures and patterns. I’ve never actually bought any, I just collect samples from B&Q, Wilkos, Homebase, and The Range.

27.JPGIn terms of a hierarchy of journal needs, I’d put some form of marker/pen near to the top. This can be sharpies or felt tips… anything you fancy writing with. I started with some glittery gel pens which I picked up from Morrisons which are good because they wrote over paint. As time’s gone one, I’ve picked up sharpies in different colours and thicknesses, some metallic markers, and a white pen.

You’re likely to need some sort of glue – pritt stick for paper things, PVA for tissue paper, cocktail sticks, or bits of sponge, and bostik if you need something a bit more hardcore for sticking bits of CD or things like that. I also have Mod Podge, but I’m still a little undecided on whether I’m a modpodge fan or not.

You might like to use some other art things like chalk, pastels, pencils, colouring pencils, ink, graphite pencils, watercolour pencils, or anything else you might associate with ‘art’, but they’re not essential, it just depends on the sort of thing you want to create.

If you want to do more mixed media type things, it can be good to pick up random bits and bobs. I use a17092837_1151419201637414_765826869_o lot of found objects like sponges, cut up CDs, cocktail sticks or toilet roll – I just collect them when I find them and keep them in my ‘box of stuff’. I have other things in there that I’ve bought specifically, too, like ice lolly sticks, tissue paper, and string. Personally, I also love polyfiller – it’s not made specifically for art purposes, it’s for fixing hole in walls among other things, but it’s really good for creating different textures.

Another thing you might want to buy is some form of plastic sheet (if you’re like me and tend to journal on the floor…). I just picked up a kid’s party tablecloth from the 05.jpgsupermarket for a couple of pounds which does the job and makes it easier to clean up.

If you don’t feel like using a lot of stuff, or getting much out, then that’s okay, too! Do a sketch page, draw something and colour it in, print a few pictures and write something over them. I love messy journaling, but I know lots of others don’t, and that’s absolutely okay.

Where to buy stuff

A lot of people art put off starting a journal because of cost, but it really, really doesn’t need to be expensive. Personally, I do own a fair amount of artycrafty stuff, but I’ve been collecting it for about ten years. You really, really do not need to break the bank. You also don’t need to go out and 10.jpgbuy everything all at once, I tend to just pick up little bits as and when I feel like it (or as and when I have money…), and have built up my collection that way.

The Works is good for cheaper art bits. They also often have mixed media bits for a pretty good price.

As well as having wallpaper samples, The Range do a lot of art bits, normally at a pretty decent price.

Supermarkets often have a stationary/kids craft section now and I often find things there, whether it be pens/markers, or fun things to stick in. They also often sell glue and string.

Poundland sometimes do acrylic paint and often do washi tape or other things you can stick on.

WH Smith do a lot of traditional art things, sketch books, and some children’s art things which are sometimes cheaper and can often be quite fun.17236856_1159084200870914_1478726121_o.jpg

Hobbycraft is heaven in craft form. They don’t tend to do things quite as cheaply as The Range or The Works but they have some wonderful and exciting things which you can treat yourself to.

B&Q sell polyfiller, and have wallpaper samples. They also have lots of paint chips which you could use for the names or the colours.

I live in York, so I’m lucky that we have a lot of local independent shops. But there may well be some in your area so it can be good to have a potter. They often have owners who will chat to you and offer advice and tips, they might even know of local art/craft groups you could go to which can be great for meeting others and finding inspiration.

Inspiration

I am constantly inspired by those around me. There are some fantastic art journals on Instagram and Tumblr. Some of us have started using the tag #journalthefeels, but there are loads of other tags out there that people are using such as #artjournal, #arttherapy and 16990766_1147368452042489_1259755976_o.jpg#journalpages.

Whenever I find a quote or lyric that I relate to, I copy and paste it into a word document. It’s an ongoing thing, about four pages long now – others might write them in a book or something, I just find a word document easier because I can delete them when I’ve done them. I tend to find the quotes/lyrics on the usual social media sites (pinterest, tumblr etc.), through books that I read, or through songs that pop up on the radio or my Spotify discover.

Pinterest has a lot of journal prompts, too, if you’re struggling for ideas.

Top Tips

As I said before, I’m by no means an expert on all of this, but I’ve come up with a few top tips which are hopefully helpful:

  • Let your book evolve with you. When I started, my book was a bit more ‘formal’. The front page is my safety plan and there are other pages in there like ‘Coping With Flashbacks’, but as time’s gone on I’ve done it in a much ‘looser’ way. I don’t tend to do specifically therapy-type pages and just go with how I feel in07.jpgstead, because I find it works better for me. Others will be different though and will prefer the more ‘formal’ type of approach. You might start your book one way and then move in a different direction and that’s okay! Let it grow with you.
  • Do it for you, first and foremost. We spend so much of our lives trying to please other people, or trying to do what we think others want us to do. If you start posting photos of your work online, especially, it’s very easy to fall into the trap of trying to do pages you think others would like to see, or ones you think will get you the most ‘likes’. It can also feel like once you’ve started posting, you have to post every page. You don’t. This book it yours, not anyone else’s. Hate paint? Don’t use it. Not a fan of quotes? Don’t use them. Want to just paint a page black? Go for it. It’s your book.
  • Just start. Staring at a blank page or a blank book is super hard. If you’re anything like me, a white page invokes fear and ‘argh’ feelings. Get rid of the white, even if you don’t know what you want to put on the page.
  • Everyone is creative, and you’re not bad at art. So what if your school art teacher never gave you a decent mark? Who cares if the arty mess that you make on a page doesn’t fit your traditional perception of ‘art’? If you enjoy it then it doesn’t matter. If you find it to be a helpful way of expressing yourself, who cares what it looks like? I personally don’t believe that there is a single person on this planet who ‘has no creativity’, it’s just that everyone’s creativity looks different.
  • It’s never going to be perfect, so don’t even try to make it that way. I really, really struggle with this and it challenges me daily. I can always see ways I could improve things, or just think things are rubbish, but perfection is an impossible goal, so there’s no point even attempting it.

This has become incredible long, but hopefully it’s readable and helpful. I absolutely love seeing other people’s journals and hearing their ideas, so if you journal too, or this has inspired you to start – please share it with me if you feel up to it!

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Stress Free App Review

The other week, a lovely person contacted me on LinkedIn, offering me the chance to try out the ‘Stress Free App‘ for free.

1I was admittedly somewhat sceptical at first. To start with, I’m scared of technology. For someone who blogs, and spends too much of their life on Twitter, I’m not all that good when it comes to apps. I only got a phone that doesn’t freeze about a month ago, my brothers frequently despair at my complete inabilty to understand Snapchat, and I have been known to reply to a text two weeks later – you get the picture. So you could say I’m a bit of an app novice!

I am also someone who has had depression/anxiety/whatever else for years, who has tried many interventions and many medications, who has spoken to a fair number of people, had tonnes of appointments, and is generally pretty jaded by ‘the system’. In summary, if someone tells me to ‘just breathe’, it makes me want to hit them.

So you could say, I approached this app with a bit of a ‘this probably won’t do anything’ attitude.

Given all that, I have been pleasently surprised!

When you first open the app, it takes you through a series of questions which assess your mood. These are pretty standard – anyone that’s ever been under services will have filled in something similar. If you score at a certain level, it recommends you speak to your GP, go to NHS online, or go to the Mind Helpline Page (not only does it recommend it then, but it also repeats that recommendation on a daily basis depending on where you rate your mood, which is really good).

It then asks you to rate your mood on a scale, then to put in where you are, what you’re 16325376_1117023151743686_294081394_odoing, what you’re thinking, and whether there’s another way you can think about it. After that it makes certain recommendations on activities you can do within the app. It repeats this exercise every day, and eventually builds up data which can help you identify how your mood has changed, what might have contributed to your mood being that way, and how else you could think about things

16325536_1117023578410310_2014548681_oWith regards to the activities themselves, there are a few different ones you can try. A lot of them centre around breathing and relaxing. I am a hater of mindfulness in the typical sense – I always focus on my breathing, forget to breathe, and get more stressed (not ideal!), but I must admit, the tasks were pretty relaxing, and focusing on the little guy on the screen really helped because it meant I didn’t forget how to breathe. I did it before bed one night and it was really good because it relaxed me enough to begin heading off to sleep (and I’m someone who has a lot of problems sleeping).

There are also a few other things in the app. One is the message in a bottle – that’s really 16326276_1117023648410303_1004923591_ocute. It just pops up with a nice little message or quote every now and again. There is also a ‘zen garden’ which is a little app-based sandpit – you can fill it yourself with water, shells, a sandcastle, a starfish, and you can rake the sand. I found myself spending a fair bit of time listening to the music, raking the sand, and completely chilling out.

16326075_1117023458410322_1432358713_oI don’t know how much this app has helped me on a large scale – I think that would be difficult to quantify over a few weeks. I also have a lot going on in my life at the moment and a long history of illness which does make things a bit more tricky. However, I would say that it’s really good for helping you to manage your breathing, to slow down a little, and to de-stress. I think that the daily mood-and-activity check in could be really useful – you could even share it with a counsellor or mental health team. I like that it refers you to your GP if it feels as though that is necessary, particularly because it doesn’t just flash up once (it’s very easy to press ‘x’!), but a number of times.

Additionally, I’m a fan of the chilled out music, and I think I’ve fallen a little bit in love with the little alien dude who takes you through each task.

Overall, if you’re looking for an app to help you log your mood, reframe some of your thinking, and generally chill out, this app could be the one for you.

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Making a Distress Tolerance Box

Anyone that’s been under a mental health team for a while, is likely to have heard of the term ‘distress tolerance’. The basic idea is that you build up your tolerance to distress, in a healthy way. Often it’s used if you’ve been using maladaptive coping mechanisms (in other words, not coping with things very well). You’re often encouraged to ‘sit with’ crappy feelings, whether it be feeling low, feeling anxious, stressing about food, needing to self harm, feeling at war with your family, or something else.

It can be super helpful to have a distress tolerence box to help with this ‘sitting’ business. I’ve been building mine up a while, so I thought I’d share it in case anyone else feels like setting up their own box.

Often you’re encouraged to try and work on the five senses: something to see, smell, taste, feel, and hear. In my case, when I’m struggling, I can’t deal with taste or strong smells, so I haven’t included those in my box. I also can struggle with noise, so I don’t have that in their either (though I’ll often leave the TV on quietly). Personally, the things that help me most are things to feel, and things to do, so those are the things my box mainly focuses on.

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To begin with, you’re going to need a box. Make sure it’s pretty enough that you’ll want to use it, sturdy enough to not fall apart when you fill it, and big enough to fit stuff in. I got mine from HomeSense and it definitely didn’t break the bank.

Then you can start to fill it and that’s when the fun begins!

Everybody’s box will be individual, because what works for one person won’t necessarily work for another, but here are some ideas of things you could include, and where I got them from.

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To start with, I have things from my friends. Things that remind me that I’m loved. Things that remind me that I’m not the worst person in the world, and that I’m lucky to have some wonderful people in my life. Some of these things are cards, some are letters, some are quotes that people have sent me. I have a seperate box of letters and cards, as well as the ones in my box (plus a few more on my wall – I pen pal with a fair few people!), but the ones that I’ve put in this box are ones that have particular meaning to me. Some include photos, too, which is always lovely. If you don’t have letters and cards from people, you can always ask your friends to send you things to include. It’s a really hard thing to ask, but from experience, people normally love to do it!

As well as letters, cards and things, I have some envelopes which are a little more specific which one of my friends sent me. They are envelopes with ‘open when…’ on the front – they’re a really lovely idea and if you don’t feel able to ask a friend to help you with it, you could always write your own, there are loads of ideas for topics online.

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Next, I have some important reminders. Personally, one of the things I struggle to deal with is scales, so I have a scale disclaimer in my box. I also have a box of ‘press pause’ cards which can be bought from Blurt, because often when I’m struggling everything can feel overwhelming and too fast, and that can help me to break out of that zone, and take a deep breath.

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I also have some other nice little things I can read. A little book of hope which Mum bought me, a little box of happiness, some worry dolls which a friend bought me, a bookmark and pen with some quotes on, and a little bag of happiness which is from the World Mental Health Day that I ran at uni a few times. You can buy them from not on the high street, or you could make one yourself!

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Moving on from the sentimental bits and bobs, I have a lot of different things to touch. I have a handwarmer, because I find temperature can be really grounding. I also have some stretchy toys which I got really cheaply from Hawkins Bazaar’s party bag section, and some balloons with different textures in and a bag of jelly balls which were sent to me by  friend (check her out on instagram at the.recovery.shoebox.project). I also have a couple of puzzles which I can fiddle with – a wooden one and a metal one.

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I find things to do really helpful, so I have quite a few things to do in my box, so that I can pick and choose depending on what mood I’m in. I have some little cross stitches, some colouring books and an origami book (with colouring pencils – the last thing you want to do, when feeling distressed, is to hunt around for some pencils). I also have some ‘make your own bunting’, a ‘paint your own suncatcher’, and some mazes and other paper puzzles, which were all from the.recovery.shoebox.project.

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Finally, I have some things to remind me of my inner child (because if you can’t look after you, sometimes it can be helpful to think about treating yourself the way you would treat your child). Bubbles, glow sticks, play doh, a little googly eyes monster, and a glitter jar (which was also from the.recovery.shoebox.project, but they’re pretty easy to make).

So, that concludes the little tour of my box. Pinterest has loads of ideas for other things you can include. If you don’t feel able to put your own box together, I highly recommed subscribing to Blurt’s Buddy Box – they send little self care packages every month and quite a few of the items in here are from those boxes, and I have other things from them on my noticeboard and walls. Other ideas for things you could include are: nail varnish, face mask, oils/sprays of your favourite scents, photos of loved ones, a list of songs you could listen to, or a USB stick with a playlist on, a teddy or other soft toy, tea bags, chocolate your favourite book… it contain literally anything that you feel could help you deal with feeling crap.

I hope this has been helpful to some people, of course once you’ve made your box, the hardest part is remembering to use it rather than resorting to doing not-so-helpful things! Please feel free to comment with other ideas for things you might include – I’m always up for adding more things to my box, and it might help others, too. If this kind of thing is helpful, please let me know and I’ll have a think about other posts I could do in a similar vein.

Sending warm hugs to everyone struggling at the moment Xxx

Even the darkest night will end and the sun will rise. -Victor Hugo

Have ‘a year’

2016 is ending, which many will be delighted about. There’s a weird thing that we all do where on one day out of 365, we look back at the previous 365 days and judge ourselves. Lots of people are posting achievements, happy moments, sad moments, words of wisdom, and hopes, dreams, and goals for the next 365 days.

I read somewhere that:

‘it’s okay if the only thing you did today was breathe’.

I would like to extend that to this year.

It’s okay if this year you ‘just survived’. It’s okay if you didn’t achieve your goals or complete all of your plans. It’s okay if you didn’t graduate, if you didn’t change the world, if you didn’t get the promotion you wanted or finish a race you wanted to run. You have still achieved something this year – you have smiled, laughed, and loved. You have brightened someone’s day, made someone smile, and made a difference in the lives of those around you.

If this year you have been in hospital, had a family member in hospital, received a new diagnosis, lived with an old diagnosis, taken medication, had an operation, had tests done, or put up with a mind or body which seem less than impressed with being alive, then I’m proud of you.

If you have had a baby, got a new job, graduated, moved house, passed an exam, received a promotion, got married, got engaged, learned to drive or raised money for charity, then I’m proud of you.

If you have taken a picture of a sunset, felt the wind in your hair, cuddled a puppy, taken the bins out, watched TV, read a book, hugged, text a friend… done anything at all that involves being alive, then I’m proud of you because at the times it can feel like there is hatred stirring all over the world and things can feel very bleak, and if you can continue to enjoy and appreciate the little things, and remain kind in the face of all of that, then you’re doing well.

I hope that 2017 is kind to you all. I hope that it brings you the things that you want. I hope that it provides you with family times and time with friends. I hope that you receive love and laughter and that you treat yourself with all of the kindness and compassion you deserve. I’m not going to tell people to have ‘a good year’, because I think that can feel out of reach a lot of the time. Instead I’m going to say have ‘a year’.

Happy Christmas

xmasHappy Christmas to you all with so much love from me and my blog.

I hope that you all have a lovely day wherever you are – whether it be alone or with family and friends, and whether you celebrate Christmas or not. I hope that you can be as happy as little me in this picture, and that if you’re not feeling that way , then your day is peaceful at the very least.

Christmas can be a tricky time when coping with loss, it can highlight the fact that someone is missing, I know I miss Mum a lot, so be kind to yourselves if you can.

I’ve donated to our Martin House fund in Mum’s memory this year because I can’t exactly get her a present. You’re more than welcome to do the same which you can do here.

If you’re feeling lonely, Sarah Millican is running her #joinin hashtag on Twitter again this year. The Samaritans line is always open, Blurt’s peer support group is there, and Beat have kept their helpline open again this year if you need someone to talk to.

This is to those of you for whom Christmas doesn’t feel like Christmas.

This is to those of you for whom Christmas doesn’t feel like Christmas.

I’m sorry that you are hurting.

I know that the ‘merry’ in ‘merry Christmas’ can feel as though it is mocking you.

When the whole world feels as though it is laughing, smiling, and celebrating, but those are the last things you feel like doing.

Crowded rooms can feel the emptiest.

Hugs can feel like they’re not quite tight enough, not quite long enough; never quite reaching you.

You smile but it doesn’t reach your eyes, and your own laugh seems distant and far away.

The pressure to be perfect can press down on your chest until you can no longer breathe and the number of people around can make your head spin. Occasionally you feel your mask slipping and you have to run to a bathroom and fix it before anybody sees.

Everybody wants to know what you’ve been doing all year and what your future plans are. That can be hard to answer when you’ve spent so much of the year in doctors appointments, hospital visits, and counselling sessions. It’s hard when your test results are medical rather than academic, when so many of your peers are patients or services users not students or colleagues.

It’s okay if your biggest achievement this year is survival. Fighting against the crap in your head, the illness that is determined to infiltrate your body, or the general difficulties that life insists on constantly throwing your way, is huge. It’s hard, brave, and courageous to continue to get up and dressed every day (or most days), when circumstances seem determined to destroy you.

Maybe you’ve lost someone this year. They might have died, or might have just exited your life. Maybe you lost someone last year, or the year before. Time doesn’t heal it, it just gives you longer to attempt to get used to it. Sometimes it makes it harder because the longer they’re gone, the more they’ve missed. Christmas can feel like it’s shining a light on the space that they’ve left behind.

It’s okay to miss them. It’s okay to grieve for them. The fact that they have exited your life doesn’t mean that you have to erase their existence entirely.

Be kind to yourself this Christmas. Let yourself have some time off. It’s absolutely okay to cry if you need to. If you want to laugh, then laugh – nothing in your life cancels out your right to feel happy. Let people in; if you can, and if you want to. Let them hug you. Let them be at the end of the phone. Let them text you. Let them listen. Let them be there.

Maybe you’re feeling just fine. If so, then please: try to be considerate this Christmas. Please understand that not everyone will be happy, not everyone will want to share copious amounts of food, not everyone will be able to manage being around large groups of people.

Christmas is only one day, but it can be incredibly stressful for those of us who don’t feel able to tackle it. Mental illness, physical illness, or other things, can all affect people’s ability to ‘Christmas’, and more often than not, we’re not trying to be difficult, we just can’t do it.

I hope that you all have a peaceful Christmas this year. I hope that it’s as stress-free as possible. I hope that you get a little time with your family or friends and that it’s as enjoyable as it can be.

I’ll leave you with some Winnie the Pooh wisdom:

“It’s snowing still,” said Eeyore gloomily.
“So it is.”
“And freezing.”
“Is it?”
“Yes,” said Eeyore. “However,” he said, brightening up a little, “we haven’t had an earthquake lately.”
― A.A. Milne