I Don’t Want to Become ‘Hardened’, I Just Want to be Me

Lots of things have happened in the news this week. Lots of things have happened in other people’s lives this week. There is a lot of stress, upset and anger in the air. Facebook is a melting pot of unkind exchanges, arguments, and blame. It’s not a nice environment to be in and I find myself shrinking away from it and burying myself in other things.

Several times in the past week, something horrible has happened either on the news, or to a friend or acquaintance; the kind of horrible things nobody should have to face. Ashamedly, when these things have happened, the first thought that has popped into my head has been ‘so?’.

You lost your bag, so? You broke up with your significant other, so? Your housing plans fell through, so? So what? You’re still living, breathing, healthy. You’ve still got both your parents. You’ve still got a steady income, a place to eat, clothes to wear. You’re still richer than most of the world’s population. Nobody’s died, things can be fixed, worse things have happened, I could go on.

I don’t say any of these things. It’s bad enough that I think them. I hate that I think them. The problem is I compare everything to Mum’s illness and death. When compared to that, a lot of things seem small or insignificant in comparison. They’re fixable.
Sometimes, this is a really helpful way to think. I certainly stress less about little things that used to really bug me. It can help me to have a clear head when dealing with difficult situations. It’s made me more resilient.
But it’s not a kind way to think. I feel as though I’m becoming ‘hardened’. I’ve always liked that I am able to empathise with a wide range of people. I love that I feel able to talk to different people about different things. I love that people feel able to talk to me. It’s an incredible privilege and very humbling, and I don’t want to lose it.
On the whole, I’m pretty good at giving myself a time out when these thoughts strike. A little bit of time to breathe, think, and then respond. I’m not sure of any other way around it.
Something that seems so small to me is something which can seem massive to someone else. It’s all relative. If a person has never gone through anything particularly difficult, then they’re more likely to find something upsetting that I might barely blink at. Other people will have gone through a lot more than me, and something which I find incredibly distressing, they may well see as nothing.
But I worry that as time goes by, I will only become more ‘hardened’. I worry that I am beginning to close off more. Sometimes I feel like shaking people, shouting at them; anything at all to make them realise how lucky they are. To stop dwelling on the seemingly insignificant and look around at all they’ve got instead of all they haven’t got. There would be no point in doing anything like that, though. It wouldn’t help. The saying ‘you don’t know what you’ve got until it’s gone’ wasn’t born out of thin air, but it’s not a great thing to yell in someone’s face.
I don’t want to become hardened. In many ways, I wish I still worried about things which now seem insignificant. I want the old me back. I don’t want to be angry, I don’t want to be hard, I don’t want to be grieving, I just want to be me.
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Some days are just HARD

Nothing specific has happened today. Well one or two things, but nothing of great significance (compared to Mum dying, anyway… I compare any challenges in my life to Mum dying, it’s a pretty effective tool for minimising any stress). The whole country feels somewhat unsettled after the EU referendum which certainly isn’t helping, and my Facebook feed is pretty unpleasant. It was noticeable in The Hut today that many members were more anxious and/or flat than normal. I had two appointments. Neither were bad, in fact they wer both pretty positive, but both contained things which are difficult to hear.

Nothing ‘bad’ has happened. Some days are just hard.

I’m tired, I’m not sleeping well at the moment. The sleeping tablets I’ve been off and on for the last 10 months (sleeping is hard when closing your eyes prompts images and memories of a very poorly Mum) aren’t cutting it right now. It takes ages to fall asleep and once I do, I wake up all night. It’s not ideal, and all day I just want to nap. I’m tired, and I don’t just mean sleep tired.

Life keeps throwing up challenges and sometimes they’re cope-able-with, sometimes they’re cope-able-with-a-bit-of-help, other times it can feel hopeless. Perhaps I’m not making any sense, but I’m not sure I understand myself right now or that I have the words to explain how I feel. I feel mute.

I miss Mum, that much is clear. I want nothing more than to run home into a Mum hug. I want my Mum to look after me, to help me through the difficult days. I want to text her when I’ve had a tough appointment, I want to let her know when good stuff happens, I want to ask her advice on which food containers to get for my cupboards. I want her to come into my room on the mornings when the world feels bleak and I’m unable to move, to bring me some cornflakes with skimmed milk and brazil nuts, to get my clothes out for me and remind me how to get dressed, just like she used to. I want to go into her room at 2am when I can’t stop crying, to sleep next to her in the big double bed, to feel safe.

I want to feel safe, anchored and ‘me’ again.

Dad: Picking Up Where We Left Off?

I was in a well-known hardware shop last week and I saw a girl who was probably about 3 or 4, being pushed around on one of those trolleys you only get in big hardware shops (they’re sort of like a platform with a handle, rather than your standard shopping trolley) by her Dad. It prompted such a clear memory of doing the same with my Dad… only instead of it being one child it would normally have been two or three. Saturday or Sunday afternoons, being pushed on one of these trolleys by my Dad, feeling like I was on Aladdin’s carpet. Everything was right in the world, I was safe with my Dad buying something exciting like wood and then we’d go home and have tea, have a bath, and go to bed listening to The Archers play on the radio in the next room.

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My relationship with my Dad has got buried somewhere in Mum’s illness and death. It got put on pause on February 8th 2014 when he text me to find out where I was (I was living at uni at the time), came and picked me up, and told me in the car that my Mum’s cancer had returned and that there was no cure. I don’t know how he ever found the words to tell me, and then to tell Mum’s’ family and friends, but he did.

Mum became ill for the first time when I was 18. Dad brought my brothers and me into the kitchen and told us about Mum’s cancer. He told us Mum had caught it early and that we shouldn’t be overly worried. We cried and hugged each other, but we were calm. I went to work that afternoon. Mum bounced back from cancer round one, and wasn’t diagnosed with terminal cancer until around 9 months later.

Once Mum was diagnosed as terminal, Dad would drive me backwards and forwards to uni, clocking up miles and miles, allowing me to continue my education as well as spending valuable time with Mum. It was Dad who learned all the biology behind Mum’s condition, Dad who learned how to care for her at every step, and Dad who became fluent in doctor-speak. It was Dad who managed all of the visitors coming in and out of our house, Dad who spent hours every day on the phone to people updating them on Mum’s condition, Dad who slept downstairs next to Mum, there for her night and day. It was Dad who was next to Mum when she died, Dad who really was there ‘til death do us part’, Dad who had to ring the GP, the coroner, and anyone else you ring when someone dies. It was Dad who rang me when Mum died, Dad who spoke to me as my world fell apart in a university stairwell, Dad who gave me a hug when I walked through the door later that day.

It’s Dad who’s left in a big house, in a small village, with three offspring and no wife.

When Mum was ill, Dad and I spoke about it a lot. At the beginning of Mum’s illness, Dad asked me to explain a few bits or bobs using my A-Level biology knowledge. As Mum’s illness progressed, Dad and I would spend half an hour in the car together between uni and home at least twice a week, which was a lot of time for talking. We would talk about Mum’s symptoms, her level of care, sometimes about what life would be like without her. We rarely talked about things that weren’t in some way related to Mum.

Mum and Dad had so many plans and so much they were looking forward to, together. Without Mum, Dad’s lost more than his ‘other half’: he’s lost his best friend, partner in crime, and confidante. They had plans to travel, to do charity work, perhaps to foster after we’d all grown up and moved out. They had other plans, ideas, hopes and dreams that I know nothing about.

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As for Dad and me, I’ve got to learn to become a daughter again. Our relationship paused two years ago, and in that time I’ve changed in so many ways and so has he. I’ve had to grow up quickly in a lot of ways, but in other ways I’ve got stuck in time. I’ve also not moved away from home in the same way as many of my peers. I’ve moved away from home physically, but I’ve got very used to going backwards and forwards on a regular basis and contacting my family multiple times a day; something which the majority of my peers definitely do not do.

Dad and I have had to start navigating this whole Dad-daughter-motherless-grief thing. He’s my Dad… but I don’t have a Mum anymore, so to some extent he’s been plonked in the role of Mum-and-Dad combined. Things I used to go to Mum for, I now either have to find a close female friend, or go to Dad. He’s got to do things he didn’t used to take sole responsibility for like remember what we have for birthday teas, or buy the odd bit of clothing.

There are times when it’s been really, really hard. Dad has never shied away from challenging me and my decisions, and as much as I love that and respect it, it can be hard when we disagree on something and I don’t have another parent to run to. Without another parent to mediate, it can then take a little while longer than it might have done to resolve anything like that. Admittedly, at times, I’ve felt like I’ve had to be a ‘Mum’ to my brothers. My Dad told me when Mum died that we should never let anyone tell us what Mum ‘would have wanted’, and that I was not my Mum, and I was not my brother’s Mum. But that can be hard; I remember things Mum did for me, like buying my favourite foods during revision periods, and I want to do the same for my brothers (this particular one resulted in a few kilos of milk bottle sweets arriving at my Dad’s house).

Working out how we all relate to each other as a family is just one more difficulty in the mountain of change that occurs when someone dies. I know that we will get there and I’m really glad we’re close enough to work through these things together.

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Father’s Day

Mother’s Day was hard… that was to be expected. But Father’s Day? I didn’t think that would really be of any significance. Turns out I was wrong.

I was just sort of going about my day earlier – standard Sunday stuff; cycle to a shop, attempt food shopping, feel proud for actually buying some salad and not adding to my ever expending washi tape collection etc. I was feeling a little more anxious than usual but wasn’t really sure why.

On my cycle home, I realised it was a Father’s Day thing. It’s not uncom218 (2016_04_23 16_52_32 UTC)memon that I dream about Dad dying, or Dad having cancer. For a long time after Mum was diagnosed I panicked at every text or call, terrified that someone else close to me was ill or had died. I’ve got a bit better at that now which is handy because I don’t think it’s healthy to panic innumerable times a day. The dreams still pop up every now and again but I don’t normally worry about it during the day any more, apart from today.

It feels odd being a daughter with only one parent. It feels odd having a Dad without a Mum. My Dad is great in pretty much every way, but it’s weird having a Father’s Day without a mother. I don’t really know what to do or say. We focussed so much on Mum while she was ill, I can remember every Mother’s Day, but I don’t remember Father’s Days, I don’t remember what we used to do…

Today has prompted lots of anxiety, a few tears, and the majority of the day spent buried under blankets, crocheting and watching various comedy programs. It caught me by surprise. I’m not alone in it, though. I’m in a Facebook group with other young people who have, or had, a terminally ill family member. I posted in there earlier today and a number of people responded with similar feelings.

Grief is a funny thing and there’s no rule book for it, no logic, no handy flow chart to guide you through. You just have to take each day as it comes, and sometimes that means spending the day buried under yarn, engrossed in TV, and I think that’s okay.

 

 

Where’s the “good” in “goodbye”?

I was going through old cards and letters the other day as I began to put things up in my room (I’ve been very creative with command hooks. I should probably have bought shares in command hooks…). I found the last birthday card that Mum ever wrote for me (which made me cry). I also found the card my family wrote for me when I first went to uni, which has found it’s way onto my wall.

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The more I read it, the more I think it’s excellent advice for life. (I wish you could FaceTime dead people, though, but Mum was cremated and I don’t think ashes can talk).

I was wandering round a shop today when ‘No Good in Goodbye‘ came on. As it came on I was scrolling through my phone and people from my uni course began to post their results.

Admittedly I got a bit of a ‘pang’ and my mind began to race about what could have/should have/might have been.

It feels stupid because I feel incredibly lucky to be where I am right now and I’m more content with life than I have been in a long time. If I’d have stayed at uni I would most likely have become even more unwell and probably wouldn’t have finished. I wouldn’t have met some of the wonderful people I now have in my life and would have missed out on some fantastic opportunities that I’ve been granted. I probably wouln’t be blogging for Blurt, or have the job I have now (which is basically my dream job).

I’m struggling to match the ‘me’ that I am, with the ‘me’ I’ve always thought I ‘should’ be. I’ve had a few conversations in the past week or so when people have been really surprised that I did Art up to AS level and DT to A2 level. They’re really surprised that I have a bit of a creative streak (something I’m debating blogging about more…). I guess I sort of abandoned creative me, and tried to become academic. There’s nothing wrong with being academic, but I don’t think it’s really ‘me’. I’m actually not a huge fan of reading and writing, I’d much prefer to play with paint, talk to people, or design a website. I like doing and being rather than sitting and reading. I like learning through doing or talking to people.

Uni was so tied up in Mum’s illness. I didn’t notice it at the time. I didn’t really think I was any different from my peers. When I’ve gone back through cards, letters and photos, though, it’s become increasingly clear how much Mum being ill really did affect it. I can see my social life dropping off. I can see the distraction setting in. I can match photos and cards to points in Mum’s illness. We tried to keep everything as ‘normal’ as possible, but looking back  I can see how far from ‘normal’ things fell.

There is no ‘good’ in ‘goodbye’ and as each day goes by, I miss Mum more and more. There’s more I want to tell her, or ask her advice on, or just chat to her about. But maybe there is a bit of good in the bad? Maybe Mum’s illness and death and my leaving uni have forced me to reassess who I am and what I’m doing with my life, and maybe that’s no bad thing…

It’s Far Too Easy to Drown in the Past

These past few weeks have been hard.

I think I maybe need to take a break from Facebook, or at least go on it less. My timeline is full of people finishing uni, going to the end of year awards at uni, doing other things that I’m currnently unable to do. Lots of people are going out a lot. Lots of people are returning home and putting up pictures of them with their Mum. Some people are getting jobs and celebrating with their Mum.

It’s easy to look at what I’ve lost. It’s easy to look at people finishing uni and feel like I’ve failed. Why didn’t I just stick it out? I didn’t stick it out because I wasn’t in a position to, I wasn’t enjoying it, and a few other reasons, but it’s hard to remember that when everyone is finishing and when you bump into people in the supermarket who ask you about finishing your degree.

It’s easy to look at people on nights out and at award ceremonies and feel frustrated with myself because at the moment going out for a few hours during the day renders me utterly exhausted. A year ago, I was one of *them*. But things have changed, life has changed, and I’ve got to accept that and stop dwelling on it.

Seeing Mums on my various timelines doesn’t usually affect me too much, I like seeing people being happy. Sometimes it’s hard though, because I miss her, because I haven’t had a hug in days and I can’t remember the time before that, because sometimes it can feel really isolating and lonely. It’s made harder when I try and talk to people about it and they just don’t get it at all. I wish I knew more people in my position, it’s so hard being young and motherless and it’s something you don’t really understand until you’re thrown into that situation (a situation I wouldn’t wish on anyone).

It’s hard when my health is not quite where it should be. Nothing drastic, but my asthma flared up again and prescription list has grown, something Mum I’m sure would have offered a sympathetic ear about (and an opinion, the side effect of being a doctor…). I’m also extremely tired all the time at the moment. I’m sleeping a lot, and minimal activity can leave me exhausted. There are a few reasons why this might be, but tiredness really doesn’t help when it comes to the whole coping thing. It also means the Race for Life was a no go this year, which was the right decision, but a really crap decision nontheless.

I need to stop looking at what might have been and focus on what I’ve got because I have so much in so many ways. I’m lucky that I have a Dad and brothers who mean a huge amount to me, and other family members who take an active interest in my life. I’m starting a new job soon, and it’s literally perfect for me (as anyone who I’ve taken the time to explain it to has said!). I have some close friends who take the time to listen to me and chat things over. I live in a lovely place. I have arms and legs that work and I’m able to get from A to B on my bike.

Things are okay. I am doing okay. I need to stop being so hard on myself. I don’t quite now what to do to help how I feel right now, but burying myself in yarn and watching hours of Netflix seems to work a little bit, so perhaps that’s the best way forward for now. Sometimes it’s the little things that help the most.

“There are far, far better things ahead than any we leave behind” – C.S. Lewis

Silence is Noisy

We’ve passed the seven month mark. Seven months since Mum died. I’m not sure when I’ll stop counting these milestones. Maybe it’ll happen when things get easier. I’m not sure it’s getting any easier yet, in some ways it’s getting harder. The day Mum died was hard, but every day since, there’s been a nagging voice in my head saying: “The longer she’s dead, the more she misses.”

I moved house again last week. A few months ago I had to move out of halls very quickly due to taking a Leave of Absence from uni, so I lodged with someone for a couple of months. But last week I moved out, into a flat which I’m sharing with a friend. I’ve also got a new job – I’m still waiting for a start date, but it’s another life change. They’re both really positive life changes, but changes nonetheless.

My Dad has been incredibly helpful in all this, as have a couple of friends. They’ve helped me make decisions, taught me valuable life lessons, and in Dad’s case, helped me move everything I own from one house to another.

I have noticed Mum’s absence, though. When you get a new job, one of the first things you usually do is tell your parents. When moving house, your parents (with any luck!) provide a vehicle of some kind and some extra arms and legs for carrying things up and down stairs. Mums, in particular, are good at remembering things you forget (such as cleaning products – a quick trip to the shop now means we have the best-stocked cleaning cupboard in York, but it’s something I hadn’t factored into the big move).

There wasn’t really anything that she would have done that didn’t get done anyway. In fact, I can’t think of anything in particular that would have been her ‘job’. At one point I did consider she may have helped me buy some new work clothes, but then I remembered she used to practically pay people to take me shopping, so maybe not!

A lack of significant ‘role’ for her doesn’t mean I’ve felt her absence any less, though. I didn’t miss her too much during the actual house-move (another pair of hands would have been useful but we can blame my brother’s man-flu for that!), but I missed her that first night. I don’t know why I missed her then – even if she was alive she’d have been at her house, not mine – but I did.

Before Mum died, I never knew how much space an absence could take up. I didn’t realise how noisy silence could be. I don’t really know how to describe it, and perhaps it’s something you never really come across until someone close to you dies, but absence can seep into every aspect of your life and can grow at an alarming rate.

It goes deeper than a simple nothing. “Nothing” can easily be masked by white noise; the radio, TV, a trip with some friends, tasteful home furnishings, or a chat on the phone. “Nothing” is easy to cover up. But absence is deeper. No amount of noise can stifle it, no amount of talking can deplete it, no amount of looking-after-yourself, being sociable or distracting yourself can make it go away. It demands to be noticed.

Time is moving forward, life is changing, and good things are happening. None of it makes the absence disappear, and sometimes it makes the absence even more noticeable, but it’s also essential. My life can’t remain in 2015, it can’t get stuck in a time when Mum was still alive – it’s got to carry on, and that means that I’ve got to keep on doing what I can to live in the present.

One step forward, two steps back.

Warning signs appear, but it’s easy to ignore them, at least to start with. Especially when life gets busy; moving jobs, moving house, everything’s changing all at once. Feelings are easy to squish for a while. You can push them down and push them down, ignore them, distract from them, pretend they don’t exist. But after a while they build up and you can’t ignore them anymore.

Suddenly you can’t get up on a morning. You’re stuck to your bed. You wake up crying, go to sleep crying, drop something and cry. You’re leaving the house half in your pyjamas (if you stick a jumper over them nobody will notice). Talking becomes difficult because words stick in your throat and attempt to choke you. The world is spinning too quickly and you can’t catch up, can’t catch your breath, can’t get off.

Your body decides now would be a good time to go a bit wrong. A blood pressure drop (lack of fluids does that to a person and drinking can be hard when you’re stuck to your bed). An asthma flare up. Another prescription to add to the ever increasing pile. A tablet to stop you falling further into the pit of whateverthisis. Another to help you leave the house. A couple to let you breathe and another to help you sleep. The list goes on.

The further you fall, the more you miss your Mum. The more you miss your Mum, the further you fall.

Emails stack up, unanswered. Sometimes read, sometimes not even opened. Other messages go unread, the longer you leave them, the more appear, until you’re faced with hours-worth of responding, a daunting prospect for even the healthiest of minds.

There are good days, there are happy moments, it’s not all bleak and bad. Hope comes and goes, when it’s there you fight, when it’s not you survive. You’ve been here before, this isn’t new, it’s a new room, a new bed, but similar symptoms. You’ve spoken to people, you’re doing what you can, but for now you just have to ride it out and hold onto the little bit of hope you have left.

Regaining Okay

Today, everyone I started uni with three years ago will hand in their final essays (and then probably go off and celebrate with a suitable amount of alcohol followed by a few days/weeks of sleep).

Taking leave from uni in October was the right thing to do. I have no doubt about that. Not going back in January was undoubtedly also the right decision at the time (albeit one which I had slightly less control over).

It doesn’t stop it being odd, though. Last week my Facebook was filled with dissertation hand-ins and this week it’s full of final hand-ins and celebrations. It feels like more than seven months since I was one of them (a living, breathing, highly caffeinated student). It feels like a lifetime ago. A lot has happened and changed in the past seven months, but it’s not just that. I really underestimated how much I was in the uni bubble, and I really underestimated how quickly I would fall out of it and feel so out of it.

Life is bringing more changes for me at the moment. I’m moving out of the place I’ve been living for five months this weekend. I’m starting a new job in the next few weeks. I’ve just finished the course I’m doing at Mind. Lots of things are changing. It’s all positive change but change nonetheless. I’ve come a long way in the past few months, but there is a long, long way still to go. I’m not working on trying to get the ‘old me’ back any more. Too much has happened and changed, and I’ve changed with it, but I’m still working on getting to a place where I have more good days than bad days, a few less ‘grief attacks’, and hopefully a lot less anxiety (something which continues to rudely interrupt my life no matter how much I tell it I’d really quite like it to disappear).

My friendships have changed, too. A lot of people who I expected to stick around haven’t, but that’s okay. It’s life. Some things some people have said or done I’ve not agreed with, but I’ve also learned to stand up to that, and I’ve learned it’s okay to leave people at a point in your life. Not everybody has to make it to your future. I’m learning to trust some of my closer friends more, and to go to them when I need them, something which is really hard to do when one of the people you always thought would be around and be there for you dies.

I don’t regret taking time out from uni. It was the right decision. It has given me space, allowed me some time to breathe, and enabled me to meet some wonderful people who I can now call my friends. I’ve really settled into a new volunteering role (which I’m hoping to keep up alongside my new job), and I would never have found it had I not arrived on their doorstep five months ago and basically spilled my life story to them and asked them if they could help me.

Even with knowing it was the right decision, it is weird seeing everyone finish and I imagine it will be weird come graduation, too. There is also a nagging voice in my head telling me I should have stuck it out and ‘just done it’ (fun little words pop up like ‘failure’ and ‘weak’). I’m trying to ignore it, though. I know that’s not the case. I’ve continued to live, continued to get up every day and do things even when they scare me, I’ve continued to work on regaining ‘okay’.