9 Months Too Long

Dear Mum,

It’s been 9 months since you left and to be honest, it’s about time you came back. I’ve definitely learned the lesson of how fab you are and how much I need you in my life; I promise to never forget that ever again. I just need you to come back.

Sometimes I think it’s all maybe getting a little easier, but then I’m hit with another huge whallop of grief – determined to knock me down and keep me there. I have to do whatever I can to find some air again and claw my way out of the grief vacuum. It would be far too easy to drown in it.

It’s sunny now. Summer is here (in true British form of ‘is it going to rain today? 1186773_429236453855696_2130074871_nI better take a coat just in case’). Last summer you hardly left the house – it was too painful and tiring. The summer before I barely remember, I think you must have been working, and I was too. The summer before that we all went away as a family, climbing up mountains in France and mountain biking down them. It was boiling hot but there was snow at the top of the mountains. There are photos of us standing in snow in t-shirts.

You loved summer. You would come home on time to watch Wimbledon (unlike the rest of the year when you would often work late), then would finish your work later that evening, after ‘Today at Wimbledon’ had finished. We’d play table tennis in the garden, or actual tennis down at the local tennis club. We’d go to places on weekends sometimes; Yorkshire Sculpture Park or Harewood House, or even just have a potter around Wetherby. 166 (2016_04_23 16_52_32 UTC)You would normally take a couple of weeks annual leave and we would go somewhere – France for many years, but Spain once or twice, or different places in the UK.

I remember one day last summer really clearly. It must have been summer because I was wearing the dress I’m wearing today (I hadn’t realised that until I thought about it just now!). Dad was at the cottage so I offered to come home and be with you. You woke up mid-morning. I helped you to the bathroom and found your medication that Dad had left out for me. You thanked me for looking after you – you had kept insisting that friends could come over or carers could come round – but that morning you told me you appreciated it being a family member. In that moment I wished more than anything that I had my life more ‘together’. I wished I’d passed my driving test so I could have come over more and done more. I wished I was more sorted, more settled, more able to help. I wished I could have spent more time with you.

I miss you.

My driving test is coming up – I’ve finally almost reached that point (let’s hope I pass…). I’m settling down. I’ve got a better work-life balance. I might have been more able to help this year. But it’s a year too late.

Nine months is no time at all, yet in my head it stretches on forever. It’s not even a year. In the grand scheme of things it’s nothing, but it’s a nine months which have perhaps been harder than any previous nine months that I’ve ever lived through.

So, it’s about time you came back now, you’ve been gone long enough. We’ve learned to do a few things without you – we’ve learned to make a decent Christmas cake, we’ve learned which suncream to buy, we’re learning how to have fun again. E managed to get off on a school trip with all documentation intact, J has finished a year of work without killing or maiming any children, Dad’s kept the house going and the boys alive. We miss you, though.

I miss you, Mum, it’s been nine months too long and the sun is screaming out for you to bustle through the house and throw us all outside.

Lots of love,
Xxx

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Here’s to Those of Us Who Aren’t Graduating This Week

It’s graduation season. Facebook knows it, Instagram knows it; it feels like everyone in the world is graduating. If you can count yourself among that number, then all I have to say is this: congratulations. I have so much respect and admiration for anyone who completes uni, whatever their degree class. It’s really not an easy thing to do, and it’s so lovely to see people smiling next to their proud family members and friends. I know people that have completed uni despite really difficult life circumstances, and I think that it’s phenomenal to have achieved so much, and they should be incredibly proud.

I also know quite a few people who should have finished university this year, but they’re not, because life didn’t go to plan. Some have horrible illnesses to deal with, some have chronically or terminally ill family members, for others life has just dealt them a rough hand and they’ve been blown off course a bit.

Currently, I’m sat in my jimjams watching Come Dine With Me repeats and hoping that tonight might be the night that I actually get a decent amount of sleep. Looking at all of these celebratory photographs while feeling so far removed from them can be pretty difficult, because there’s a nagging voice in the back of my brain saying “that could’ve been you”. It can be so easy to look at other people’s lives and see all that you’ve lost. Had life gone to plan, I would have been stood there alongside my peers in a cap and gown, smiling next to two proud parents. That’s what I always thought would happen when I signed up to university three years ago.

But for me, and some others I know, even if we’d have stayed at uni and graduated with our class, we wouldn’t have had two parents stood smiling next to us, because we don’t have two parents any more.

The other morning, I was cycling around this beautiful city I now call home, as part of my job. I later went into the office, talked to my lovely colleagues, and spent a couple of hours listening to the radio whilst doing some work. I left the office and went to The Hut where I volunteer, and spent a while sat on a bench, chatting in the sunshine with a friend I met there. I came home and after a driving lesson, I spent some time with my flatmate, doing her hair for a dinner she was going to. I’m so lucky. I’m much more content than I have been in a long, long, time. I feel like I’m finally beginning to get a little ‘me’ back.
I wouldn’t have ever found The Hut, or my job, if I hadn’t left uni when I did. I wouldn’t have made that friend; I probably wouldn’t be living where I am now. I don’t know what I would have done or where I would be, but I wouldn’t be here; and I’m happy here.

I know a few others who have left uni, too, or are simply graduating at a later date. One or two have jobs, some are still living in this city and others have moved elsewhere. All of them are doing something with their life, and that’s amazing to see.

So here’s to those of us whose lives got blown off course. Those who are continuing to get up and face the world every single day, despite seeing how far life will go to try and make sure we can’t. Who are in new jobs, making new friends, creating a different life from the one we had always planned. Who might not have got a cap and gown on today, but who got dressed in something resembling an acceptable outfit, despite the crippling depression/stress/pain that can be in our lives, those of us for whom getting dressed and leaving the house is a real achievement. Here’s to those of us who don’t have that certificate, but who deserve a medal for simply participating in life when sometimes all we want to do is hide.

To everyone who is continuing to live their life, despite horrendous circumstances, I’m proud of you. To my friends who are watching Facebook this week with a pang of disappointment or sense of failure, I’m proud of you. I’m so proud of you for continuing to smile, for continuing to check if others around you are okay, for holding others together when you feel like falling apart, I’m really, really proud of you. I hope that you can look at all you have achieved, and all that you are, even if it’s not something you can get a certificate for, and feel a little proud of yourself, too.

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Chilling on Friday morning, reflecting on the lack of graduation, but the amazingness that is my job 🙂

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The Dinner Party

Around the time of Mum’s death, I came across The Dinner Party. It originates in America, and there is currently only one Dinner Party in the UK (based in London). It’s been at the back of my mind for a while, but has come to the forefront of my mind recently, for a couple of reasons.

The idea of the The Dinner Party, is that people who’ve experienced loss come together over some food, and chat openly and honesty about loss, and life after loss.

I’ve been thinking about hosting one in York… I’ve spoken to TDP about how I would go about that and they’ve been super helpful. But before I go any further, I wanted to know if there would be any interest from people in attending a Dinner Party based in York? If you would be interested in joining us, please could you drop a comment below with your email, or email me, and I can put a list together and get back to you all 🙂 Thank you!

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I Don’t Want to Become ‘Hardened’, I Just Want to be Me

Lots of things have happened in the news this week. Lots of things have happened in other people’s lives this week. There is a lot of stress, upset and anger in the air. Facebook is a melting pot of unkind exchanges, arguments, and blame. It’s not a nice environment to be in and I find myself shrinking away from it and burying myself in other things.

Several times in the past week, something horrible has happened either on the news, or to a friend or acquaintance; the kind of horrible things nobody should have to face. Ashamedly, when these things have happened, the first thought that has popped into my head has been ‘so?’.

You lost your bag, so? You broke up with your significant other, so? Your housing plans fell through, so? So what? You’re still living, breathing, healthy. You’ve still got both your parents. You’ve still got a steady income, a place to eat, clothes to wear. You’re still richer than most of the world’s population. Nobody’s died, things can be fixed, worse things have happened, I could go on.

I don’t say any of these things. It’s bad enough that I think them. I hate that I think them. The problem is I compare everything to Mum’s illness and death. When compared to that, a lot of things seem small or insignificant in comparison. They’re fixable.
Sometimes, this is a really helpful way to think. I certainly stress less about little things that used to really bug me. It can help me to have a clear head when dealing with difficult situations. It’s made me more resilient.
But it’s not a kind way to think. I feel as though I’m becoming ‘hardened’. I’ve always liked that I am able to empathise with a wide range of people. I love that I feel able to talk to different people about different things. I love that people feel able to talk to me. It’s an incredible privilege and very humbling, and I don’t want to lose it.
On the whole, I’m pretty good at giving myself a time out when these thoughts strike. A little bit of time to breathe, think, and then respond. I’m not sure of any other way around it.
Something that seems so small to me is something which can seem massive to someone else. It’s all relative. If a person has never gone through anything particularly difficult, then they’re more likely to find something upsetting that I might barely blink at. Other people will have gone through a lot more than me, and something which I find incredibly distressing, they may well see as nothing.
But I worry that as time goes by, I will only become more ‘hardened’. I worry that I am beginning to close off more. Sometimes I feel like shaking people, shouting at them; anything at all to make them realise how lucky they are. To stop dwelling on the seemingly insignificant and look around at all they’ve got instead of all they haven’t got. There would be no point in doing anything like that, though. It wouldn’t help. The saying ‘you don’t know what you’ve got until it’s gone’ wasn’t born out of thin air, but it’s not a great thing to yell in someone’s face.
I don’t want to become hardened. In many ways, I wish I still worried about things which now seem insignificant. I want the old me back. I don’t want to be angry, I don’t want to be hard, I don’t want to be grieving, I just want to be me.
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Some days are just HARD

Nothing specific has happened today. Well one or two things, but nothing of great significance (compared to Mum dying, anyway… I compare any challenges in my life to Mum dying, it’s a pretty effective tool for minimising any stress). The whole country feels somewhat unsettled after the EU referendum which certainly isn’t helping, and my Facebook feed is pretty unpleasant. It was noticeable in The Hut today that many members were more anxious and/or flat than normal. I had two appointments. Neither were bad, in fact they wer both pretty positive, but both contained things which are difficult to hear.

Nothing ‘bad’ has happened. Some days are just hard.

I’m tired, I’m not sleeping well at the moment. The sleeping tablets I’ve been off and on for the last 10 months (sleeping is hard when closing your eyes prompts images and memories of a very poorly Mum) aren’t cutting it right now. It takes ages to fall asleep and once I do, I wake up all night. It’s not ideal, and all day I just want to nap. I’m tired, and I don’t just mean sleep tired.

Life keeps throwing up challenges and sometimes they’re cope-able-with, sometimes they’re cope-able-with-a-bit-of-help, other times it can feel hopeless. Perhaps I’m not making any sense, but I’m not sure I understand myself right now or that I have the words to explain how I feel. I feel mute.

I miss Mum, that much is clear. I want nothing more than to run home into a Mum hug. I want my Mum to look after me, to help me through the difficult days. I want to text her when I’ve had a tough appointment, I want to let her know when good stuff happens, I want to ask her advice on which food containers to get for my cupboards. I want her to come into my room on the mornings when the world feels bleak and I’m unable to move, to bring me some cornflakes with skimmed milk and brazil nuts, to get my clothes out for me and remind me how to get dressed, just like she used to. I want to go into her room at 2am when I can’t stop crying, to sleep next to her in the big double bed, to feel safe.

I want to feel safe, anchored and ‘me’ again.

Dad: Picking Up Where We Left Off?

I was in a well-known hardware shop last week and I saw a girl who was probably about 3 or 4, being pushed around on one of those trolleys you only get in big hardware shops (they’re sort of like a platform with a handle, rather than your standard shopping trolley) by her Dad. It prompted such a clear memory of doing the same with my Dad… only instead of it being one child it would normally have been two or three. Saturday or Sunday afternoons, being pushed on one of these trolleys by my Dad, feeling like I was on Aladdin’s carpet. Everything was right in the world, I was safe with my Dad buying something exciting like wood and then we’d go home and have tea, have a bath, and go to bed listening to The Archers play on the radio in the next room.

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My relationship with my Dad has got buried somewhere in Mum’s illness and death. It got put on pause on February 8th 2014 when he text me to find out where I was (I was living at uni at the time), came and picked me up, and told me in the car that my Mum’s cancer had returned and that there was no cure. I don’t know how he ever found the words to tell me, and then to tell Mum’s’ family and friends, but he did.

Mum became ill for the first time when I was 18. Dad brought my brothers and me into the kitchen and told us about Mum’s cancer. He told us Mum had caught it early and that we shouldn’t be overly worried. We cried and hugged each other, but we were calm. I went to work that afternoon. Mum bounced back from cancer round one, and wasn’t diagnosed with terminal cancer until around 9 months later.

Once Mum was diagnosed as terminal, Dad would drive me backwards and forwards to uni, clocking up miles and miles, allowing me to continue my education as well as spending valuable time with Mum. It was Dad who learned all the biology behind Mum’s condition, Dad who learned how to care for her at every step, and Dad who became fluent in doctor-speak. It was Dad who managed all of the visitors coming in and out of our house, Dad who spent hours every day on the phone to people updating them on Mum’s condition, Dad who slept downstairs next to Mum, there for her night and day. It was Dad who was next to Mum when she died, Dad who really was there ‘til death do us part’, Dad who had to ring the GP, the coroner, and anyone else you ring when someone dies. It was Dad who rang me when Mum died, Dad who spoke to me as my world fell apart in a university stairwell, Dad who gave me a hug when I walked through the door later that day.

It’s Dad who’s left in a big house, in a small village, with three offspring and no wife.

When Mum was ill, Dad and I spoke about it a lot. At the beginning of Mum’s illness, Dad asked me to explain a few bits or bobs using my A-Level biology knowledge. As Mum’s illness progressed, Dad and I would spend half an hour in the car together between uni and home at least twice a week, which was a lot of time for talking. We would talk about Mum’s symptoms, her level of care, sometimes about what life would be like without her. We rarely talked about things that weren’t in some way related to Mum.

Mum and Dad had so many plans and so much they were looking forward to, together. Without Mum, Dad’s lost more than his ‘other half’: he’s lost his best friend, partner in crime, and confidante. They had plans to travel, to do charity work, perhaps to foster after we’d all grown up and moved out. They had other plans, ideas, hopes and dreams that I know nothing about.

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As for Dad and me, I’ve got to learn to become a daughter again. Our relationship paused two years ago, and in that time I’ve changed in so many ways and so has he. I’ve had to grow up quickly in a lot of ways, but in other ways I’ve got stuck in time. I’ve also not moved away from home in the same way as many of my peers. I’ve moved away from home physically, but I’ve got very used to going backwards and forwards on a regular basis and contacting my family multiple times a day; something which the majority of my peers definitely do not do.

Dad and I have had to start navigating this whole Dad-daughter-motherless-grief thing. He’s my Dad… but I don’t have a Mum anymore, so to some extent he’s been plonked in the role of Mum-and-Dad combined. Things I used to go to Mum for, I now either have to find a close female friend, or go to Dad. He’s got to do things he didn’t used to take sole responsibility for like remember what we have for birthday teas, or buy the odd bit of clothing.

There are times when it’s been really, really hard. Dad has never shied away from challenging me and my decisions, and as much as I love that and respect it, it can be hard when we disagree on something and I don’t have another parent to run to. Without another parent to mediate, it can then take a little while longer than it might have done to resolve anything like that. Admittedly, at times, I’ve felt like I’ve had to be a ‘Mum’ to my brothers. My Dad told me when Mum died that we should never let anyone tell us what Mum ‘would have wanted’, and that I was not my Mum, and I was not my brother’s Mum. But that can be hard; I remember things Mum did for me, like buying my favourite foods during revision periods, and I want to do the same for my brothers (this particular one resulted in a few kilos of milk bottle sweets arriving at my Dad’s house).

Working out how we all relate to each other as a family is just one more difficulty in the mountain of change that occurs when someone dies. I know that we will get there and I’m really glad we’re close enough to work through these things together.

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Father’s Day

Mother’s Day was hard… that was to be expected. But Father’s Day? I didn’t think that would really be of any significance. Turns out I was wrong.

I was just sort of going about my day earlier – standard Sunday stuff; cycle to a shop, attempt food shopping, feel proud for actually buying some salad and not adding to my ever expending washi tape collection etc. I was feeling a little more anxious than usual but wasn’t really sure why.

On my cycle home, I realised it was a Father’s Day thing. It’s not uncom218 (2016_04_23 16_52_32 UTC)memon that I dream about Dad dying, or Dad having cancer. For a long time after Mum was diagnosed I panicked at every text or call, terrified that someone else close to me was ill or had died. I’ve got a bit better at that now which is handy because I don’t think it’s healthy to panic innumerable times a day. The dreams still pop up every now and again but I don’t normally worry about it during the day any more, apart from today.

It feels odd being a daughter with only one parent. It feels odd having a Dad without a Mum. My Dad is great in pretty much every way, but it’s weird having a Father’s Day without a mother. I don’t really know what to do or say. We focussed so much on Mum while she was ill, I can remember every Mother’s Day, but I don’t remember Father’s Days, I don’t remember what we used to do…

Today has prompted lots of anxiety, a few tears, and the majority of the day spent buried under blankets, crocheting and watching various comedy programs. It caught me by surprise. I’m not alone in it, though. I’m in a Facebook group with other young people who have, or had, a terminally ill family member. I posted in there earlier today and a number of people responded with similar feelings.

Grief is a funny thing and there’s no rule book for it, no logic, no handy flow chart to guide you through. You just have to take each day as it comes, and sometimes that means spending the day buried under yarn, engrossed in TV, and I think that’s okay.

 

 

Where’s the “good” in “goodbye”?

I was going through old cards and letters the other day as I began to put things up in my room (I’ve been very creative with command hooks. I should probably have bought shares in command hooks…). I found the last birthday card that Mum ever wrote for me (which made me cry). I also found the card my family wrote for me when I first went to uni, which has found it’s way onto my wall.

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The more I read it, the more I think it’s excellent advice for life. (I wish you could FaceTime dead people, though, but Mum was cremated and I don’t think ashes can talk).

I was wandering round a shop today when ‘No Good in Goodbye‘ came on. As it came on I was scrolling through my phone and people from my uni course began to post their results.

Admittedly I got a bit of a ‘pang’ and my mind began to race about what could have/should have/might have been.

It feels stupid because I feel incredibly lucky to be where I am right now and I’m more content with life than I have been in a long time. If I’d have stayed at uni I would most likely have become even more unwell and probably wouldn’t have finished. I wouldn’t have met some of the wonderful people I now have in my life and would have missed out on some fantastic opportunities that I’ve been granted. I probably wouln’t be blogging for Blurt, or have the job I have now (which is basically my dream job).

I’m struggling to match the ‘me’ that I am, with the ‘me’ I’ve always thought I ‘should’ be. I’ve had a few conversations in the past week or so when people have been really surprised that I did Art up to AS level and DT to A2 level. They’re really surprised that I have a bit of a creative streak (something I’m debating blogging about more…). I guess I sort of abandoned creative me, and tried to become academic. There’s nothing wrong with being academic, but I don’t think it’s really ‘me’. I’m actually not a huge fan of reading and writing, I’d much prefer to play with paint, talk to people, or design a website. I like doing and being rather than sitting and reading. I like learning through doing or talking to people.

Uni was so tied up in Mum’s illness. I didn’t notice it at the time. I didn’t really think I was any different from my peers. When I’ve gone back through cards, letters and photos, though, it’s become increasingly clear how much Mum being ill really did affect it. I can see my social life dropping off. I can see the distraction setting in. I can match photos and cards to points in Mum’s illness. We tried to keep everything as ‘normal’ as possible, but looking back  I can see how far from ‘normal’ things fell.

There is no ‘good’ in ‘goodbye’ and as each day goes by, I miss Mum more and more. There’s more I want to tell her, or ask her advice on, or just chat to her about. But maybe there is a bit of good in the bad? Maybe Mum’s illness and death and my leaving uni have forced me to reassess who I am and what I’m doing with my life, and maybe that’s no bad thing…

It’s Far Too Easy to Drown in the Past

These past few weeks have been hard.

I think I maybe need to take a break from Facebook, or at least go on it less. My timeline is full of people finishing uni, going to the end of year awards at uni, doing other things that I’m currnently unable to do. Lots of people are going out a lot. Lots of people are returning home and putting up pictures of them with their Mum. Some people are getting jobs and celebrating with their Mum.

It’s easy to look at what I’ve lost. It’s easy to look at people finishing uni and feel like I’ve failed. Why didn’t I just stick it out? I didn’t stick it out because I wasn’t in a position to, I wasn’t enjoying it, and a few other reasons, but it’s hard to remember that when everyone is finishing and when you bump into people in the supermarket who ask you about finishing your degree.

It’s easy to look at people on nights out and at award ceremonies and feel frustrated with myself because at the moment going out for a few hours during the day renders me utterly exhausted. A year ago, I was one of *them*. But things have changed, life has changed, and I’ve got to accept that and stop dwelling on it.

Seeing Mums on my various timelines doesn’t usually affect me too much, I like seeing people being happy. Sometimes it’s hard though, because I miss her, because I haven’t had a hug in days and I can’t remember the time before that, because sometimes it can feel really isolating and lonely. It’s made harder when I try and talk to people about it and they just don’t get it at all. I wish I knew more people in my position, it’s so hard being young and motherless and it’s something you don’t really understand until you’re thrown into that situation (a situation I wouldn’t wish on anyone).

It’s hard when my health is not quite where it should be. Nothing drastic, but my asthma flared up again and prescription list has grown, something Mum I’m sure would have offered a sympathetic ear about (and an opinion, the side effect of being a doctor…). I’m also extremely tired all the time at the moment. I’m sleeping a lot, and minimal activity can leave me exhausted. There are a few reasons why this might be, but tiredness really doesn’t help when it comes to the whole coping thing. It also means the Race for Life was a no go this year, which was the right decision, but a really crap decision nontheless.

I need to stop looking at what might have been and focus on what I’ve got because I have so much in so many ways. I’m lucky that I have a Dad and brothers who mean a huge amount to me, and other family members who take an active interest in my life. I’m starting a new job soon, and it’s literally perfect for me (as anyone who I’ve taken the time to explain it to has said!). I have some close friends who take the time to listen to me and chat things over. I live in a lovely place. I have arms and legs that work and I’m able to get from A to B on my bike.

Things are okay. I am doing okay. I need to stop being so hard on myself. I don’t quite now what to do to help how I feel right now, but burying myself in yarn and watching hours of Netflix seems to work a little bit, so perhaps that’s the best way forward for now. Sometimes it’s the little things that help the most.

“There are far, far better things ahead than any we leave behind” – C.S. Lewis