Where’s the “good” in “goodbye”?

I was going through old cards and letters the other day as I began to put things up in my room (I’ve been very creative with command hooks. I should probably have bought shares in command hooks…). I found the last birthday card that Mum ever wrote for me (which made me cry). I also found the card my family wrote for me when I first went to uni, which has found it’s way onto my wall.

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The more I read it, the more I think it’s excellent advice for life. (I wish you could FaceTime dead people, though, but Mum was cremated and I don’t think ashes can talk).

I was wandering round a shop today when ‘No Good in Goodbye‘ came on. As it came on I was scrolling through my phone and people from my uni course began to post their results.

Admittedly I got a bit of a ‘pang’ and my mind began to race about what could have/should have/might have been.

It feels stupid because I feel incredibly lucky to be where I am right now and I’m more content with life than I have been in a long time. If I’d have stayed at uni I would most likely have become even more unwell and probably wouldn’t have finished. I wouldn’t have met some of the wonderful people I now have in my life and would have missed out on some fantastic opportunities that I’ve been granted. I probably wouln’t be blogging for Blurt, or have the job I have now (which is basically my dream job).

I’m struggling to match the ‘me’ that I am, with the ‘me’ I’ve always thought I ‘should’ be. I’ve had a few conversations in the past week or so when people have been really surprised that I did Art up to AS level and DT to A2 level. They’re really surprised that I have a bit of a creative streak (something I’m debating blogging about more…). I guess I sort of abandoned creative me, and tried to become academic. There’s nothing wrong with being academic, but I don’t think it’s really ‘me’. I’m actually not a huge fan of reading and writing, I’d much prefer to play with paint, talk to people, or design a website. I like doing and being rather than sitting and reading. I like learning through doing or talking to people.

Uni was so tied up in Mum’s illness. I didn’t notice it at the time. I didn’t really think I was any different from my peers. When I’ve gone back through cards, letters and photos, though, it’s become increasingly clear how much Mum being ill really did affect it. I can see my social life dropping off. I can see the distraction setting in. I can match photos and cards to points in Mum’s illness. We tried to keep everything as ‘normal’ as possible, but looking back  I can see how far from ‘normal’ things fell.

There is no ‘good’ in ‘goodbye’ and as each day goes by, I miss Mum more and more. There’s more I want to tell her, or ask her advice on, or just chat to her about. But maybe there is a bit of good in the bad? Maybe Mum’s illness and death and my leaving uni have forced me to reassess who I am and what I’m doing with my life, and maybe that’s no bad thing…

Silence is Noisy

We’ve passed the seven month mark. Seven months since Mum died. I’m not sure when I’ll stop counting these milestones. Maybe it’ll happen when things get easier. I’m not sure it’s getting any easier yet, in some ways it’s getting harder. The day Mum died was hard, but every day since, there’s been a nagging voice in my head saying: “The longer she’s dead, the more she misses.”

I moved house again last week. A few months ago I had to move out of halls very quickly due to taking a Leave of Absence from uni, so I lodged with someone for a couple of months. But last week I moved out, into a flat which I’m sharing with a friend. I’ve also got a new job – I’m still waiting for a start date, but it’s another life change. They’re both really positive life changes, but changes nonetheless.

My Dad has been incredibly helpful in all this, as have a couple of friends. They’ve helped me make decisions, taught me valuable life lessons, and in Dad’s case, helped me move everything I own from one house to another.

I have noticed Mum’s absence, though. When you get a new job, one of the first things you usually do is tell your parents. When moving house, your parents (with any luck!) provide a vehicle of some kind and some extra arms and legs for carrying things up and down stairs. Mums, in particular, are good at remembering things you forget (such as cleaning products – a quick trip to the shop now means we have the best-stocked cleaning cupboard in York, but it’s something I hadn’t factored into the big move).

There wasn’t really anything that she would have done that didn’t get done anyway. In fact, I can’t think of anything in particular that would have been her ‘job’. At one point I did consider she may have helped me buy some new work clothes, but then I remembered she used to practically pay people to take me shopping, so maybe not!

A lack of significant ‘role’ for her doesn’t mean I’ve felt her absence any less, though. I didn’t miss her too much during the actual house-move (another pair of hands would have been useful but we can blame my brother’s man-flu for that!), but I missed her that first night. I don’t know why I missed her then – even if she was alive she’d have been at her house, not mine – but I did.

Before Mum died, I never knew how much space an absence could take up. I didn’t realise how noisy silence could be. I don’t really know how to describe it, and perhaps it’s something you never really come across until someone close to you dies, but absence can seep into every aspect of your life and can grow at an alarming rate.

It goes deeper than a simple nothing. “Nothing” can easily be masked by white noise; the radio, TV, a trip with some friends, tasteful home furnishings, or a chat on the phone. “Nothing” is easy to cover up. But absence is deeper. No amount of noise can stifle it, no amount of talking can deplete it, no amount of looking-after-yourself, being sociable or distracting yourself can make it go away. It demands to be noticed.

Time is moving forward, life is changing, and good things are happening. None of it makes the absence disappear, and sometimes it makes the absence even more noticeable, but it’s also essential. My life can’t remain in 2015, it can’t get stuck in a time when Mum was still alive – it’s got to carry on, and that means that I’ve got to keep on doing what I can to live in the present.

Learning toAccept ‘Okay’

We live in a society of extremes. Our media constantly reports the best of humanity and, more often, the worst of humanity (they sort of have to, I don’t imagine anyone would read ‘man went to work and nothing happened’). The adverts that surround us tell his how to be ‘skinnier’, ‘more toned’, ‘more muscular’, ‘smarter’, basically ‘better’.

Well before we’re able to make decisions for ourselves, life is insidiously turned into a sort of Hunger Games, pitting young people against each other for the benefit of the wider world – and it works in stages. As toddlers, we are pitted against our peers to see who can walk first, talk first, count first. If you pass that stage well enough, then school becomes your new battleground, where we are told to be the ‘best’, to achieve the ‘best grades’, to win every sports match, basically to be at the top in everything we do. Do well enough there, and leaving school and moving into a job becomes the next battleground – targets and challenges are thrown at you from every angle, with competition manifesting itself in salary, houses, cars, anything tangible that people can use to compare themselves to one another.

We push ourselves, try to squeeze more than we can fit into each hour of every day, we run on empty and burn ourselves out. We lose ourselves, our very dreams, in the quest to ‘be the best’. And ultimately, what for? Someone will always be better, faster, smarter, stronger (unless you really are at the top, but so few people ever get there that most people will have to settle somewhere along the line). If we do achieve or succeed, the pressure only mounts. We have to look up and down at the same time, beating anyone who tries to take our place whilst simultaneously trying to reach higher and overtake the person in front. It’s exhausting, and it’s not healthy.

There’s something incredibly freeing about learning to accept ‘okay’. Following Mum’s death there have been lots of ups and downs. It can often feel like everything is crap and nothing is ever going to get better. There have been weeks when I have felt incredibly low, and at times like that, I don’t want to feel ‘good’ or ‘great’, I literally just want to feel ‘okay’. It’s not normal for anyone to feel ‘great’ all the time or even ‘good’ all the time (whatever adverts might tell us!). Sometimes feeling okay, and being at peace with that, can be such a relief.

When it comes to other aspects of life, as much as it is admirable to constantly strive to be better, sometimes it’s necessary to accept ‘okay’. You didn’t get all of your jobs for the day done, but it’s okay because there’s tomorrow. Your room is a little messier than you’d like, but it’s okay because you’ve had a busy week and you’re tired. You don’t feel like cooking tonight, but it’s okay because ready meals, takeaways and toast exist, and you’ve had a busy day. These are really basic examples, but it’s the start of a new ‘okay’ mindset.

Of course, in some aspects of your life you will want to strive for better than okay, and that’s okay too! If you have a big exam coming up, of course you will try to get the best grade you possibly can. When going for a promotion, of course you will want to put your all into it. When it’s your child’s birthday party, of course you will want to make it as memorable as possible (in a good way!). But equally, when you do put your all into everything and you don’t achieve what you’d hoped, it’s not the end of the world; it really isn’t.

Adding ‘okay’ to your vocabulary is so vital in today’s society when there is pressure from every angle. When you’re expected to do unpaid overtime, have a ‘perfect’ house, a ‘perfect’ body and a ‘perfect’ social life all at the same time (which, by the way, is entirely unrealistic). You are okay. You really are okay. And most of the time, so am I.

Featured: http://www.huffingtonpost.co.uk/naomibarrow/self-esteem-being-okay_b_9826172.html

A Broken Jigsaw

I don’t have words to describe the depth of feeling that comes with grief. As each day goes by it hits me time after time how much life is never going to be the same again. I am never going to return to the person I was pre-2012. I’ve got to create this new person/life/something, but it feels like triyng to do a jigsaw where there are pieces missing, extra pieces from another jigsaw, and no picture to guide you.

Homesick

I want to go home and to pull into the drive and see my mum busy in the kitchen cooking tea. I want the kitchen to smell of baking and cooking. I want her to welcome me with a hug. I want to help her finish tea while chatting about what I’m up to and what she’s doing at work. I want to sit down with my family and eat with them. Then after I want to go and sit in the lounge with all of them, with mum, and watch tv or a film or something (but spend so much time talking over it that we hardly know what’s going on). And I want my Mum to offer me chocolate and offer me 1000 reasons why chocolate is 100% necessary for human survival. And I want to be able to put my head in her lap or sit on her knee when things get hard. And to take selfies with her. I want to hear her laugh. I want to be able to go into her bed at night again when things get too unbearable and I’m not sure I can make it as far as morning. I want her to ask but not expect an answer and just be there. I just want somewhere to feel like home.

6 Months

It’s 6 months today since Mum died. There aren’t really any words to put to it. It’s just a fact.

A lot has changed in the past 6 months. I live somewhere new, I’ve made new friends, I’ve lost a few friends, I stopped going to uni and started volunteering at a few places and doing a course at Mind, I started a new job, and I’m slowly trying to develop some sort of a social life.

There have been some great things and some not-so-great things.

I thought maybe I’d start to miss Mum a little less, but at the moment I seem to be missing her more and more. I’m not sure why, perhaps it’s the weather, who knows. 6 months-post death and people stop asking. Not a criticism on anyone, life moves on, people move on, and there’s not a lot you can update when it comes to grief (as opposed to illness where something happens all the time). Sometimes I just want a Mum hug though, they’re different to other hugs. It can feel like all I need is one hug and I’ll be on my way. I didn’t live with Mum in her final years so it’s not like I saw her every day, but we did text often and I knew where she was if I needed her – I suppose I always took that for granted. She wasn’t meant to die.

So 6 months have passed. Soon there will be another 6 months, and then another. I just hope that with each passing 6 months, things get a little easier.

Illness vs Death

People don’t realise that has horrible as Mum dying was, it’s her illness which is having such a huge effect on me at the moment.

It was seeing her slurring and seeing things on the walls, unable to eat or walk, and then getting lost in Leeds in the dark on a Friday night because I was so upset I didn’t look where I was going and before I knew it I was stuck somewhere not-so-safe. Before that I was so confident at being out and about but now if I’m out in the dark I am so anxious and it’s only made worse by noise.

It was seeing the woman I’ve always seen as so strong, capable and ‘big’ unable to even reach up to her face to scratch her cheek… having to feed her water through a sponge and wipe her face for her. Then seeing other women, who I’ve always seen as role models, crying. Leaving the room and crying. Turning away and crying. Breaking down unable to speak. Having to remain strong for them, because they needed it.

The last stages of her illness were hard, really hard… but it was the sudden deterioration 8 months prior to that which really changed everything. It was so sudden and so unexpected.

I miss my Mum a huge amount, and there is a lot to come to terms with, but it’s the illness I’m struggling to get past. I get images in my head and I can see them in front of me when I’m watching TV or walking in the street or whatever and they won’t go away. Sometimes it feels like I’m back there. I haven’t slept in my bedroom at Dad’s house since that week.

I don’t know how to deal with it or where to go with it. There are no answers or solutions. I don’t even remember it all properly (yet?) but it’s just always there.

10271626_747664941922103_6494238436515259520_nIt was seeing the woman I’ve always seen as so strong, capable and ‘big’ unable to even reach up to her face to scratch her cheek…

UK Blog Awards 2016

UK Blog Awards popped up on my Twitter feed with a call for nominations a couple of months ago. I procrastinated for weeks -my confidence isn’t all that great and I’m constantly surprised that people actually want to read what I write. It took a lot of persuasion from friends but eventually I nominated myself.

In all honesty, the main reason I decided to do it was to increase the exposure of this blog, not because I want tens of thousands of followers on Twitter or to be the most popular blog in the world ever or anything like that. I just know how alone I felt when Mum was first diagnosed, and how alone I’ve felt at times throughout her illness and eventual death and the more people who read this blog, the more likely it is that it will read someone who is in a similar position and needs to feel less alone.

I can’t cure cancer. I can’t bring my Mum back. I can’t change what has happened in our lives over the last few years. I can’t write off anyone else’s diagnosis or stop anyone else from going through the pain of cancer or of a loved one dying. All I can do is keep writing and hope that someone might read it at 2am when the world feels dark, and that it helps them to fall asleep knowing they’re not completely alone.

If you’d like to vote for me in these awards, you can do so here.

One Month Without Mum

It’s been a month since Mum died. Thirty-one days. Seven hundred and seventy-four hours. Four thousand, four hundred and 60 minutes.

It feels like a long time, as though it’s been years, but also feels as though she could have died yesterday or last week. If there’s one thing I’ve learned from grief it’s that time stops making sense and you just have to roll with it. Sometimes hours can feel like days and other times days can seem like hours, but as long as you’re moving forward it doesn’t really matter.

I miss Mum more than ever. Christmas is beginning to enter the shops and it’s always been such a special time of year for us. Mum made the cake in October, and we’d start making mince pies around then, too, most of which were frozen until Christmas. As Christmas got nearer we’d make a shortbread Christmas tree and a gingerbread house. We’d always planned for her to visit me at uni and go Christmas shopping together, in York, but it never happened. The Christmas market is being constructed at the moment, and I remember going around Leeds Christmas market with Mum during cancer round one. We wrapped up in our woollies, ate caramelised nuts and browsed the stalls assigning presents to people.

I’ve encountered a few situations over the past month where I’ve really, really, needed Mum. I’ve gone to Dad or older female friends for advice and though they have been fantastic and incredibly helpful, it’s not the same. I still often find myself going to text Mum or drop her a Facebook message only to remember that she can’t reply. The one thing that sticks with me, whatever the situation, is the message ‘be kind to yourself’, because that’s what Mum always used to say to me, and it’s pretty good advice for most situations.

I didn’t realise how often I spoke to Mum. The first time she was diagnosed, I was on my gap year, so when Mum was on a chemo week and I wasn’t at work, we’d spend time together knitting and watching TV. We grew a lot closer over that time. I think when your Mum has a brush with cancer you appreciate her a lot more. I would text her most days and if I didn’t we’d normally end up in a Facebook conversation later on in the evening. In February we thought she was going to die and since then our communications have only intensified, I would speak to her about even more things and we’d wish each other goodnight most days. I miss her wishing me goodnight.

But it’s the hangover from Mum’s illness and death which surprises me the most. For months I have had my phone on me at all times, waiting for a text or call to say that she’d died, or was about to die. Now I jump when I get a phone call. I panic if I can’t find my phone. I am more anxious and jittery then I ever was before Mum’s illness. I rarely have a full night of sleep, I often dream of Mum, or of her dying again, or of Dad being diagnosed with something. Often when a family member contacts me I expect it to be them telling me that somebody else is poorly or has died. Some days I struggle to leave the house for fear of someone asking me how Mum is, because that’s something which happened for a long time. I’m struggling to go out with people my age because I can’t remember how to do it, it feels like it’s been such a long time. I’m slowly building my life back up, but part of that is realising how far things have slipped from where they were, and that’s something I learn more about every day.

One month has passed. We’ve survived the funeral. Things are beginning to settle and everybody has gone back to work, school, and wherever else they might go. One month of questions for Mum float around my head. One month of things I want to tell her. One month of smiles she hasn’t seen. One month of problems she hasn’t solved. One month of moments she hasn’t shared. One month of conversations from which she’s been absent.

Some days are okay; I can smile, laugh, work, see people and generally live life. Other days are hard and I have to just be patient with myself. I miss her. I miss her so much. But I can live my life alongside missing her. Most importantly, despite missing her, I can still be kind to myself.

Featured: http://www.huffingtonpost.co.uk/naomibarrow/grief-bereavement_b_8625392.html